Wednesday, September 9, 2015

life around here - farewell summer

It's been so long since I updated my blog, I thought it was time to finally write a life update. The last time I posted I was struggling with my health in a major way. That struggle lasted for several weeks and there are still days when I feel pretty unwell. But since that update, I have been feeling much better. The vertigo has subsided for the most part. I do have days where it returns for a bit, but usually not more than a few hours which is sooo much better than the constant vertigo. I still have frequent headaches/earaches and just general malaise sometimes but have been taking good care of myself, exercising and eating well and just generally not letting it get to me. An afternoon nap every couple of days seems to help keep my body feeling well and my husband and kiddos have been great about letting me rest when I need to. I will admit that I still do experience some confusion and cognitive difficulties when the pain in my head and ear is at its worse. But I've learned not to let it bother me too much. I mean realistically, I have three small kids so I'm expected to be a bit confused and absent minded, right?!
This summer was one of our best ever. Truly. It was a summer of new experiences and adventures. Our kids got to see and experience things they'd never dreamed of. At the beginning of the summer we sat together and wrote out a bucket list for the summer break. And we managed to cross off the majority of their bucket list items. We did splash parks, stayed in a hotel with a pool, stayed in a penthouse suite (thank you Georgian Court Hotel!!), visited the wildlife park, went to the lake, went on amusement rides, visit the Kids Market on Granville Island, did bungee and luge adventures in Whistler, went on a gondola ride, tried eating at new restaurants. It was seriously awesome. In between all the exciting new things we did lots of relaxing in the backyard pool, ice cream runs and playground dates. Looking back at the summer, it was the perfect balance of doing lots of nothing and everything :)
Creatively, it was a challenging summer. I've always put myself and my own interests last. And I don't say that in a negative way. Being with my family is the most important thing to me. So creating is for those times when everyone is happily doing something of their own or when hubby's at work and the kids are at school or friends' houses, etc. So finding the time to create was a challenge, but I did manage to squeeze in some time here and there. It wasn't a super productive summer of creating, but it was fulfilling because everything I created was just created in a spur of the moment, overwhelming desire to get messy. And most of the time the kids were right by my side getting messy too so it was the best of both worlds. 
As lovely as summer was, I'm happy to see September. I'm always and forever going to be a creature of routine and truthfully, by the end of summer break I tend to start feeling a little anxiety stricken about how chaotic our life has become in just a couple of months. I was so happy to sit down a few nights ago and do our meal planning for the month. Like giddy excited. Yep, I am a big dork. It just feels so good to start sliding back into a routine where everything just fits and you don't find yourself trying to throw together a meal at 7 in the evening because you've been going non stop all day long. 
And of course, I would be lying by omission if I didn't admit that I am looking forward to those two blissful hours a day I'm going to have to myself while the oldest two are at school and the little one naps. I have been writing inspiration notes to myself all summer long and I can't wait to start making them more than just ideas and thoughts!

Friday, May 22, 2015

Still me... but broken.

Still me.

For the past few weeks, I've hinted in my Instagram and Facebook posts that I've been struggling with my health. At the beginning of all this, while I was really quite ill, we thought (myself, my family, the doctors) that it would be a simple round of medication, rest, self care and I would be back on my feet within a couple of weeks. But that didn't happen and now it's time to talk a little bit about what's going on because it has deeply affected all aspects of our life and has changed me in ways that may not always be easy to hide, even from behind a computer screen.

So at 32 years old, after letting myself get run down and really neglecting to take care of my body while we tackled this recent transfer across the country, my immune system crashed and after a few weeks of feeling really unwell, I realized that I had Shingles. Ugh. Yuck. Just gross. I went to the ER and got antivirals immediately and the doctor seemed to think we caught it quickly and for the first few days of antivirals, it seemed that we had because the rash cleared up super fast and it seemed like I was getting better. 

On day four of the antivirals, however, I woke up not feeling myself at all. I had so much pain and pressure in my head that I wished someone could cut off the top of my skull to give me relief. And I was confused. Everything around me was spinning. Or else I felt like I was spinning. I was unsteady. I couldn't focus on anything. I shrugged it off, thinking I was probably just having a reaction to the medications and I only had to take them for another 3 days so I would suck it up and soldier on. So for the next three days the symptoms got worse until I no longer had clear moments. It was constant severe vertigo, pain and pressure from the time I got up until I went to bed and even when I woke up throughout the night. I finished the medication and waited for the symptoms to go away. But three days later, it was still getting worse, not better. So back to the hospital again. 

After putting me through a mass of physical and cognitive tests in consultation with a neurologist, my doctor informed me that I was suffering from a complication that sometimes occurs in Shingles patients, called Ramsay Hunt Syndrome. Basically, the Shingles infection moved into my facial nerves along my ear canal, my jaw and also behind my eyes. Again, the doctors were hopeful that another round of medication (steroids this time) would bring the symptoms to a halt. Fast forward through a week of steroids and unfortunately, the treatment wasn't successful. The symptoms continued to get worse.

Back to the doctor again. More consultation with neurology. And the conclusion is that it is uncertain whether or not I will recover from RHS or whether this will be my new normal. An MRI might be able to tell the doctors more about possible extent of nerve damage to provide a better prognosis, but unfortunately I can't have an MRI because of previous medical history. 

So here we are. Overnight, through a fluke infection that went awry, our lives changed dramatically. It may be permanent, or I could wake up tomorrow morning and feel normal again. I spent several days waking up in the morning and lying in bed hoping that I would stand up and feel steady and clear. And suffering a crushing disappointment when it didn't happen. I cried. I was angry, depressed, scared and felt useless. And I just about drove my poor husband bat shit crazy dwelling on the what ifs.

So we have made a decision as a family that we are going to treat this as if it's not going to go away. Accept this as my new normal. And that doesn't mean we're giving up. It just means that we aren't willing to become a family that says "we'll wait to do that when mommy feels better."
So we are adapting and adjusting. We are rearranging our routines and our habits to suit my new normal.

Let me explain a little bit about what my new normal looks like.

  • For starters, and perhaps the most devastating and limiting effect of this is that I can no longer drive. For those of you who have known me my whole life and know the fears I had to overcome to get my license 4 years ago, you will probably be able to imagine how much it hurts to have that taken away from me. My car is now parked in the garage where I don't have to walk past it feeling sad that I can't drive our kids to the park. Errands have to wait until my husband is available to run them, or drive me around town. Super frustrating for someone as independent as I am. I hate it. But I can't walk a straight line 90% of the time so it's definitely not safe for me to drive, at least not right now. 
  • Severe vertigo - while at home, dealing with the dizziness and constant spinning, off balance sensation of vertigo is manageable. There are lots of walls, furniture is close together, lots of visual cues available for me to judge my distances and keep myself from falling. Going out in public is a different story. There is nothing to hold onto most of the time and my eyes have become very photosensitive so being out in the sunlight causes the vertigo to get extremely overwhelming. I have to make sure I don't leave the house without sunglasses on and usually don't stray far anymore because physical activity seems to make the pressure, pain and vertigo worse. I walk around the block with the little one in the stroller when I'm feeling stir crazy - the stroller gives me something to keep myself steady and also keeps her safe and close to me, because I can't be certain that I would be physically able to run to grab her if she was in danger. I get exhausted just from running a few small errands because it takes every bit of my concentration to stay on my feet. But I'm going to keep doing it anyway. Because I'm just stubborn like that. 
  • Pain - is constant. My head feels like it is full to the point of bursting open. My ears and my eyes constantly hurt. The more I am active, the worse the pain becomes. I have a very high pain threshold from my many, many previous injuries but this pain actually tops having nearly every bone in my body broken all at the same time. I take 1/4 of the dosage of medication that has been prescribed for the nerve pain at bedtime because it makes me drowsy and I have three little kids to take care of during the day. So when I say that I have a bad headache, I mean I have a really bad headache. I would rather have my femur crushed into 4 different pieces again any day of the week. 
  • And... most scary of all this, is the fact that I am experiencing cognitive difficulties. When I wake up the morning, my mind feels relatively fresh and I find that I am able to think pretty clearly. However, as the day progresses and my body gets tired and the struggle of constantly having to be actively paying attention to balancing my body and staying on my feet takes its toll, I begin to suffer from focus and recall problems. By the time most evenings roll around, my ability to function cognitively resembles that of a patient in the beginning stages of dementia. As a person who has a very public life through my Saltons Cove Studio social media accounts, this is something that I fear will become noticeable and a large part of the reason I'm writing this post. These issues may or may not get worse and it's important for me that if I start to make mistakes when writing blog, instagram or facebook posts, my followers are aware that I haven't become lazy or decided I don't care about the little details... that I'm still giving it my very best. I hope that you'll be able to have patience with me. And for goodness sake, if you ever see me post a piece of artwork that has a jumbled up quote or something that doesn't make an ounce of sense, tell me. Seriously, shout it at me from the mountain top.
So sometimes I may use a word that doesn't make any sense. We are finding that it's usually a word that sounds similar to the one I wanted to use, but for some reason my brain chooses the wrong one. Like when I asked my husband if he'd found his lost kids last week when he'd misplaced his keys. Or when I told our oldest son one morning that I had to take a bag of ketchup out to the curb. He questioned me and I really didn't get what the issue was. He had to get the bottle of ketchup out of the fridge, point to it telling me it was ketchup. And then point to the bag of garbage I was holding and tell me it was garbage before I was able to realize my mistake. 

Sometimes I may not be as productive as I normally am. It is nearly impossible for me to multitask. Me, a person who normally juggles 50 balls in the air and rarely drops a single one... now I find myself fighting to keep just one in the air at a time. A couple days ago I had to ask my mom to stop talking to me on the phone for a few minutes because I was making a casserole and couldn't concentrate on how to put it together and listen to her at the same time. 

Sometimes I'm going to need reminders. Possibly many reminders. Feel free to nag me. I would love it. I've put a system in place to ensure that I have reminders all around me that there is stuff that needs to be done, but I do a lot of walking into a room and then not knowing why I went there. I mean a person with healthy thought processes does this as well on occasion. But normally walks out, remembers what they went for and goes back in and does it. I do that 20 times and never figure it out. And then later when my kid has no clean shorts for school, I finally realize the reason I made 20 trips to the laundry area that ended in me wandering around confused and getting frustrated and giving up.

Sometimes, if you visit me, you might see me doing things that just seem a little bit off. Like opening the door to the fridge when the microwave beeps. You might notice that during the day, my house is a mess. I've decided that if I only have part of my day to be productive and thinking half clearly and feeling half good, then I'm not wasting it cleaning. That good time is for the things that make me and my family happy. The mindless tasks like loading the dishwasher and sweeping the floor can wait until the evening when my brain feels like scrambled eggs and can't really handle anything more complicated. 

So this is the new me. This is as brutally honest as I can be about how this whole ordeal has upset our life. I have good days and bad days. Yesterday was a good day. I felt clear and well for about 3 hours and I made the most of it. I danced with the kids for two hours straight and made my husband one of his favorite meals for dinner. Today is not such a great day. I woke up with my brain feeling like it couldn't make a single thought connection and struggled to get the kids a simple breakfast.

But despite all these challenges I'm facing, I am still all the best parts of the old me. I am still a person whose heart is so full of love it overflows. My family and friends still come before anything else, even if I can't remember their birthdays or phone numbers these days. My brain still whirls with inspiration and creativity and art has become therapy more than ever. I am still fiercely independent. And I am strong. I will not be reduced to waiting, hoping and wishing for better circumstances. These are my circumstances. And that is okay. My life is still beautiful and I am going to be just fine. 

Monday, May 4, 2015

monday color inspiration: magenta, sunshine yellow, navy & white

Credits: The art prints in the inspiration photo are from Gathered Nest Designs on Etsy and the sewing/cosmetic bag is by Sew Caroline.

I am slowly easing back into blogging about my crazy creative life. I'm not making any promises and I'm not scheduling a darn thing until I find my writing groove again.
So. This collection of images has been sitting on a Pinterest board for months. Possibly a whole year of months. I wouldn't be surprised. I saw fabric line by Sew Caroline first and saw the darling little makeup bags she'd created with it and the color combination just made my heart happy. So then I went searching for other examples of that color palette and found a bunch of lovely photos but these were my favorites. So I've been holding on to this color inspiration board for quite a long time. Maybe waiting for it to actually inspire me before I posted it. Or maybe just waiting until I got up the nerve to try this blogging thing again. Because if you've 'known' me for awhile, then you know it usually goes real well for a bit and then my blogging train gets derailed.
Either way, it was pretty exciting to pull this out and actually use the color palette this past weekend. And I love the outcome. Love, love, love this trio of 6x6" canvases. Yes, I love them that much.

This may become one of my favorite go to color palettes. I'd definitely like to play around with it on a larger scale project sometime in the near future. And it's going in my inspiration journal as a potential art journal palette as well. When I find a combo that makes me happy, I roll with it :)
And this combo reminds me of a hot summer day. And I love hot summer days.